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Wednesday, August 20, 2008 2:03 PM CDT


AAAAAAAAAnnndd They're OFF...!!! And what a departure. One of the most amazing scenes we've ever witnessed occured Tuesday evening in front of our home as dozens of friends and neighbors along with supporters from our church and community marched up to our front lawn with a patriotic chant of "GO MARIN". I think almost everyone on our street was participating, but anyone who wasn't was drawn in to it by the very loud, very touching, and very emotionial street scene. We heard the the march coming down the street from our upstairs TV room where Marin was relaxing. With the Olympic theme songs blaring from a boom box, we looked out over a sea of familiar faces and we were taken over by emotion. Like a scene out of "Evita", Marin was waving to the crowd from the upstairs window as the intensity of the cheers grew louder and louder.

We took Marin downstairs and outside to greet everyone and the cheering continued for several more minutes. With signs and US flags and other patriotic paraphanalia, Timberlake Church and the Sammamish community showed an incredible level of love and support. It was an amazing scene and a memory of a lifetime. Then it was time to go to bed early as the girls were packed and ready for a 3-AM wake-up call. The early morning flight to the Olympic training center in Colorado was preceeded by a ride to the airports in a LIMOUSINE! courtesy of the Timberlake Men's Club, another amazing gesture of support on our behalf. Of course Camie and Michael and Camie's sleepover friends Caleigh and Kelsie were thrilled to go along for the ride. Eric Johnson and his photog Doug from KOMO-4 were at the airport to greet us too. What a trip.

Nancy reports now that she and Marin have landed safe in Colorado Springs and the flights went well. Marin really showed a lot of courage dealing with all the travel hassles and she came through it all like a champ. They'll go through team processing today, and if she's feeling up to it, she'll go for a swim later in the day. The officials at the training center offered their encouragement and support and Marin's Paralympic dream is underway.

Thanks to all for the amazing emotional and financial support we've received through all of this. Though she's not feeling very well, Marin is as happy as she's ever been.

Beijing bound,

Marin & Nancy, Matt, Camlyn & Michael


Sunday, August 17, 2008 12:21 AM CDT


We continue to enjoy the Olympic games and Marin is getting even more revved up for Beijing. We're in awe of what Michael Phelps has accomplished and amazed at the race he won Friday night and the relay victory to break the gold medal record. Way to go Phelps, way to go USA!!

Not to be overlooked is the terrific story of Eric Shanteau, who Marin looked up to when he was in an older age group on her SwimAtlanta team. Eric was diagnosed with testicular cancer earlier this summer and he opted to fullfill his Olympic dream as well. It was inspiring for Marin to see Eric swimming on TV and we wish him the best in his treatment and recovery. We already know he has a survivors fighting spirit.

Once again, Eric Johnson at KOMO-4 News here in Seattle has done a terrific profile on Marin, updating her story as she continues to fight her brain cancer and make it to Beijing. You can view the story by cutting & pasting the following link:

http://www.komonews.com/news/27004534.html

And on a tip from Uncle Andy, columnist Dave Albee of my old hometown paper the Marin Independent-Journal did a nice piece on Marin (the swimmer) as well. Check it out at:

http://www.marinij.com/sports/ci_10227917

Thanks Dave and Eric, both were very well done.

Swim strong,

Marin & Nancy, Matt, Camlyn & Michael


Saturday, August 16, 2008 12:55 AM CDT


We continue to enjoy the Olympic games and Marin is getting even more revved up for Beijing. We're in awe of what Michael Phelps is accomplishing and amazed at the race he won last night. Now we're anticipating the big relay race where he could break the record with his 8th gold at these games. Go Phelps, Go USA!!

Not to be overlooked is the terrific story of Eric Shanteau, who Marin looked up to when he was in an older age group on her SwimAtlanta team. Eric was diagnosed with testicular cancer earlier this summer and he opted to fullfill his Olympic dream as well. It was inspiring for Marin to see Eric swimming on TV and we wish him the best in his treatment and recovery. We already know he has a survivors fighting spirit.

Once again, Eric Johnson at KOMO-4 News here in Seattle has done a terrific profile on Marin, updating her story as she continues to fight her brIN cancer and make it to Beijing. You can view the story by cutting & pasting the following link:

http://www.komonews.com/news/27004534.html

And on a tip from Uncle Andy, columnist Dave Albee of my old hometown paper the Marin Independent-Journal did a nice piece on Marin (the swimmer) as well. Check it out at:

http://www.marinij.com/sports/ci_10222358

Thanks Dave and Eric, both were very well done.

Swim strong,

Marin & Nancy, Matt, Camlyn & Michael


Thursday, August 14, 2008 0:55 AM CDT


Another day of amazing swimming in Beijing, and again, we are so proud of our friend Kathleen Hersey who swam in the finals of the 200-fly and made us so happy to see her performing for our country in front of the entire world. And what timing... on the NBC telecast, as the coverage moved to the Swimming Cube and the focus early was on Michael Phelps, there was Kathleen, large and much more photogenic, standing in the background with her beautiful smile (way more appealing, even if the greatest swimmer of all-time was there in the foreground). Then again, later in the telecast, when the announcers introduced Kathleen for her final, she beamed with another of her indelible smiles as her proud parents Regina and Brian looked on and Marin was thrilled to see her good friend as she realized a dream of a lifetime. Congratulations Kathleen, congratulations Regina and Brian, congratulations SwimAtlanta, and conratulations USA!!

Marin, Nancy, Matt, Camlyn & Michael


Wednesday, August 13, 2008 11:58 PM CDT


Another day of amazing swimming in Beijing, and again, we are so proud of our friend Kathleen Hersey who swam in the finals of the 200-fly and made us so happy to see her performing for our country in front of the entire world. And what timing... on the NBC telecast, as the coverage moved to the swimming cube and they focused on Michael Phelps, there was Kathleen, large and much more photogenic, standing in the background with her beautiful smile. Marin was thrilled to see her, even if the greatest swimmer of all time happened to be in the foreground. Congratulations Kathleen, congratulations SwimAtlanta, and conratulations USA!!

Marin, Nancy, Matt, Camlyn & Michael


Wednesday, August 13, 2008 1:17 AM CDT


Watching the action in Beijing has been ultra-inspiring for all of us. Marin has been glued to the action, especially excited to see her friend and former SWAT teammate Kathleen Hersey perform so well in the 200-fly. Through the prelims and semi-finals, Kathleen continues to set her PR and we are very excited to see her swim in the finals Wednesday after she tied for 5th in the semi's.

Of course, watching Michael Phelps is incredible, and what an amazing athlete we are all witnessing at the very height of his athletic ability. I remember Mark Spitz doing his thing back in 1972 and that performance remains indelible; now Phelps takes his place as not only the greatest swimmer ever (sorry, Johnny Weismuller) but the greatest Olympic champion of all time. Folks, enjoy this.

Marin was very happy to see her special friend Aaron Piersol win his gold medal in the 100-back... and isn't Jason Lezak the MVP in the pool this week? How about that finish in the men's 4x100 free relay! Incredible.

Thanks as always for the prayers, support and well wishes. And congratulations to Mr. and Mrs. Fred Northup of Southdown productions.

Marin, Nancy, Matt, Camie & Michael


Sunday, August 3, 2008 11:39 PM CDT


Another pretty good week for Marin as she continues to train and gets more and more excited abour Beijing. While she continues to struggle daily with various side affects of her illness, she's always inspired to get to the pool and swim. Even as she feels the constant discomfort of vertigo and nauseau, she still swims nearly every day and she always feels better after getting her workout. She's been training closely with her therapists Andrea and Beth who join us at the pool for stretching and strength exercises. Everyone around her is giving extra effort to help Marin fulfill her dream of competing well in Beijing. We're also happy to have speech therapist Jessie back on her case and Marin enjoys the mental stimulation she gets from Jessie very much.

We've been inspired ourselves by all the people that have recognized Marin and offered her well wishes over the past several weeks. It's very encouraging when people offer their sincere well wishes and we've received so many recently, by e-mail, in cards and in person. Thank you.

It's a big week ahead, with Marin a part of her teacher Ashley's wedding party and scheduled to throw out the first pitch at the Mariners game next weekend. With the trip to Beijing now less than two weeks away, the anticipation is building. Marin & Nancy leave for processing in Colorado on August 19th, then it's off to Okinawa, Japan for about ten days before heading to Beijing. It's all very exciting and a bit stressful at the same time. Our friends and neighors continue a fundraising effort at:

http://morrisonolympicfund.kintera.org

Thanks to all who've helped us so far and any donations still being considered. Have a great week and we'll keep you updated.

Swim Strong!

Marin & Nancy, Matt, Camlyn & Michael


Thursday, July 24, 2008 9:02 PM CDT


In a bit of an up & down week for Marin we've shared more good times than anything. We enjoyed a great visit with cousins Eli, Miranda and Owen who arrived with Aunt Kate late last week and stayed through until Tuesday. The kids all enjoyed a little excitement when a crew from NBC met us at the Bellevue club pool to do a feature story on Marin for the Paralympics telecast in September. It was an all-day effort by the crew and they were so cool and impressed with Marin that Jason, the photographer, actually donated his day's salary to Marin's fund. Man, talk about a moving gesture and a humbling feeling. Thank you Jason, Charlie & Kristen for your kindness and professionalism.

But just as Marin felt pretty good and swam through the weekend, she did not feel well Monday through Wednesday. Her nauseau was too much and she just didn't have the energy to get out and go to the pool. She slept a lot, but her appetite was good. Then today, Thursday, she was feeling better and she returned to the pool for a very good workout. This time, a crew from the local NBC affiliate KING-5 did a follow-up story on her and it aired this evening. It was very well done. Thanks Eric.

Through good days and not so good, Marin continues to smile and inspire us at all times. She's looking forward to being a bridesmaid in the wedding of her teacher Ashley next month, and throwing out the first pitch at a Mariners game the next day. Living it up on the road to Beijing.

Thanks, as always, for the great notes of encouragement,

Marin & Nancy, Matt, Camlyn & Michael


Wednesday, July 16, 2008 11:08 PM CDT


The sun continues to shine on us and Marin is soaking it up. The upshot of her weekend swimming in Victoria is that she came through in every situation. She was up early each morning, swam in every event, morning and afternoon, started, raced and finished all her events, built up her confidence with her performance, and enjoyed the time she had with her teammates. Her times were secondary, and indeed when asked how she did by any passerby with an interest, Marin expressed passive disappointment. She still, and always will, measure herself against the best she's ever been; but the fact is, coming from where she's been, she's never been better. Thank you for all the wonderful notes and well wishes.
Beijing bound,
Marin & Nanncy, Matt, Camlyn & Michael.


Saturday, July 12, 2008 4:31 PM CDT


Greetings from beautiful Victoria, BC. We arrived Thursday afternoon to swim in the big Can/Am disability meet without really knowing how well Marin would feel, but we're happy to report that she's doing very well! On Friday, she swam the 50m-backstroke, her best event, and performed nicely. Just getting in the pool and racing, to completion, was our goal for her and Marin did more than that. She clocked in under a minute for the 50m, 59.14 to be precise, and felt good before, during and after the prelims. This in itself was great to see. When we returned in the afternoon for the finals, she again did well warming-up, racing and finishing. Her time was a little slower, but that might have had something to do with the fact she wasn't ready to start when the horn went off. Still, a great first day back in competition, especially for someone who had brain surgery less than 9 weeks ago, spent six weeks in the hosital, then underwent two weeks of radiation. We're very pleased with our little swimmer! In this morning's prelims, she swam the 50m-freestyle, which she does as a backstroke and she swam an even better 57.70! A taste of competition has her really inspired, and while she's not happy with her times yet, she really looks good.

This is now about the sixth straight day she's been in the pool and swimming. Prior to a week ago, she hadn't been in the pool in any two consecutive days since the Paralympic trials in April. She's really come a long way. She's gained 12-pounds since she came home from the hospital, her appetite is getting better, her strength and stamina are increasing and her energy level is much better. We were apprehensive about bringing her to this meet, but she's shown us so much and proved to herself that she can make a strong comeback... again.

It's been great to see all the US Paralympian teammates, coaches and parents here in BC. The excitement for Beijing is really building. We were also thrilled to watch the Olympic swimming trials on TV last week and are so proud of Kathleen Hersey, Marin's friend and teammate from SwimAtlanta, who made the US team in the 200m-butterfly. Way to go Kathleen!

On now to the finals this evening. We'll keep you posted!
Shine on!

Marin & Matt, Nancy, Camie & Michael


Wednesday, July 2, 2008 11:52 PM CDT


While enduring the first Northwest heat wave of the summer, Marin has had a good first part of the week. Although she wasn't able to swim Monday, she's had two pretty good back to back days on Tuesday and Wednesday, getting better and better with each session in the pool. Of course she's not satisfied with her limitations and lack of stamina right now, and she scoffs when we give her encouraging feedback, but we're seeing improvement as she goes farther and farther with her workouts each time out. She's registered for a big Can Am event in Victoria, BC at the end of next week and it's an important competition to see where she stands with Beijing coming fast on the horizon. The swimming part has been fine, but exertion tends to cause her dizziness to flare up and the nuances of pushing off on the start and flip-turns kind of scare her right now. Fortunately she swims mostly 50-meter events so she won't have to worry about the flips much. It is scary for her to test herself, but she's there every time she can be pushing herself a little farther. We'll see next week and we're hopeful.

In the meantime, Marin's been getting very fired up watching the Olympic Trials from Omaha with several of her swim pals making a big splash on TV this week. What a thrill it was to see her friends Kathleen Hersey and Ariana Kukors swimming like champs in the finals of the 400 IM on Monday night! We were all so proud and happy for both of these youn ladies who've been very kind to Marin and our family over the years. We're pulling very hard for them to make the Olympic team in other events, but just the thrill of seeing them compete right up there with the very best in the world was awesome. Of course the excitement of Aaron Piersol's world record Tuesday night was a lot of fun for Marin who had a big smile when she saw him on TV. Michael Phelps too!

The traveling ladies rolled home in the wee hours Wednesday after an amazing cross country journey that took them to Washington DC, Gettysburg, The Rock & Roll Hall of Fame, Chicago (where they saw Stevie Wonder), The Black Hills, Mt. Rushmore, Yellowstone Park, The Lewis & Clark Caverns, and home safe to Sammamish. 8 days of good times!

Drive long and swim strong,

Marin & Thelma, Matt, Louise & Michael


Saturday, June 28, 2008 8:47 PM CDT


Marin's birthday celebrations kept her in a constant smile through the week, but as far as her overall health, she's alternated between good days and bad. We think the radiation was effective because she's having better days more than she did in the previous few months; nevertheless, this week was an alternate between good days and bad. Some mornings she's able to eat breakfast (relatively quickly) get her suit on and head for the pool. Others, she's simply too dizzy or headachy to get going. We made it as far as the pool three times last week but one day she simply couldn't get in. Finishing strong on Friday, she swam slowly and haltingly but did manage about a half dozen laps, which is her best so far since the surgery. She felt good throughout this swimming session, which I would have to say was her best yet since we returned home from the hospital. Her coach Andy stopped by to help her and we were both encouraged by Marin's effort. It turned out to be a rare day that she didn't need an afternoon nap at all and we were all able to enjoy one of the finest days of the year here in the northwest (nothing but sunshine from dawn to dusk; 5am to 10 pm!).

As for other happenings, Nancy had a fun and informative weekend at the Olympic Trainig center in Colorado Springs a week ago where she stood in for Marin and gathered exciting information about the trip to Beijing. It was very inspiring and we appreciate the cards and notes from Marin's teammates expressing their well-wishes and hopes for her recovery. Marin was very fired up as she listened in to meetings via conference calls and learned of other details through Mom's reports.

After returning from Colorado, Nancy prepared for another journey, taking Camie with her to Washington, DC to drive home with Dad's van and his belongings from his stint in Bethesda. It's a Mom & Daughter cross-country 'Thelma & Louise' ride that's off to a great start. After batting their eye-lashes to get a first-class upgrade (at no charge) on their flight out, and then touring our nation's capital on Wednesday (with the help of cousins Owen & Megan, and Dan) they set out from the east coast Thursday to enjoy their adventure along the way. The first stop was the Gettysburg battlefield before pulling in to Cleveland Thursday night. Of course, the Rock & Roll Hall of Fame was first on the agenda Friday morning then a drive across the upper midwest to Chicago where a stay in a nice downtown hotel made the ladies feel special on Friday night. The two blondes spent Saturday in the Windy City where a 'Taste of Chicago' festival was happening on the Lake Michigan waterfront. Of course Nancy sweet-talked their way in to the VIP section to view the free Stevie Wonder Concert from the first few rows. Good times. And more good times. Next stop, the Badlands in South Dakota before Mt. Rushmore sometime in the next few days.

Happy trails and good times in the summer of '08,

Marin & Nancy, Matt, Camie & Michael


Friday, June 20, 2008 11:22 AM CDT


Marin's birthday arrived with sunshine and it really was a great day altogether. The evening before, Molly & Deb and lots of friends arrived and did their work in the street in front of our house with sidewalk chalk wishing Marin a happy birthday in colorful art work. Marin was surprised and thrilled and had a nice time visiting with everyone. School's out, so Thursday was the first day of summer vacation for Camie and Michael. Everyone except Nancy slept in a little while Mom took an early flight to Colorado Springs for a weekend at the Olympic Training Center. Marin hasn't been well enough to attend the Paralympic Swim Team camp this weekend but she has been getting better and her birthday was a nice example of that.

After sleeping late, and her birthday-request breakfast of chocolate chip pancakes, we all went to the Bellevue Club pool where Marin swam for the third time in four days. Each time has been a little better then the last. When she first got back in the pool Monday, she was barely able to swim a lap on her back. The exertion made her dizzy and we shut her down quickly, just doing some back and forth walking in the water. She didn't feel up to it Tuesday, then went for it again Wednesday when she was able to do a little more work before she was unable to continue. Thursday she was able to swim more laps, only about five total, but she felt better and she didn't have too much dizziness. We worked out doing other exercises in the water until she started to get too chilly, then finished by warming up in the hot tub. The crew at the BCC made her feel special on her birthday, with cards and well wishes from all her friends there. Coach Andy showed up at the pool with flowers and gifts to wish her a happy birthday as well.

After swimming, we all went out for a birthday lunch as Marin enjoyed a delicious salad and ate almost all of it. Her apetite is getting better and we're hoping we can get her off the feeding tube in the near future. Her stamina is improving as well and for the second straight day she did not take a nap in the afternoon at all (it's been months since she hasn't needed so much sleep). A broad smile creased my face when we returned home and she walked up the stairs without assistance, sometimes taking them two at a time. Neighbors and friends left flowers and gifts at the door and out house now has a great aroma of fresh flowers everywhere. Marin's PT Deb from school visited in the evening and Marin had plenty of energy to get down on the floor and exercise a little with her. Our friend Katrina arrived with more macrobiotic food for Marin, including a healthy chocolate cake that Marin really enjoyed. We spent the remainder of the evening reading the dozens of birthday cards that arrived this week with aunts, uncles, cousins and friends from all over remembering her special day. Marin also got lots of well wishes from her friends on facebook and here on her website. Thank you to everyone near and far who shared this special day with us in spirit and deed.

And good luck to all our friends competing in the Olympic swim trials this week.

Swimming strong into the weekend,

Marin & Nancy, Matt, Camie & Michael


Sunday, June 15, 2008 8:51 PM CDT


Cleaning up the kitchen after a Saturday night party - $0
Listening to an inspiring Sunday morning sermon - $20 tithe
Coffee and doughnuts with friends after church - $2
A round of miniature golf, in the sun, with 2 of my 3 children - $23
A round of Jamba Juice at the 19th hole - $9
Yard work deferred to the wife - $0
Sending the kids with Nancy & friends to the neghborhood pool - $0
Watching Tiger swirl in a birdie putt on 18 to force a US Open playoff - worth every cent of our cable bill
Playing gin rummy with Marin on the comfy couch - $0
A call to Napa for a chat with my Dad - Free on my weekend plan
Fathers Day with the family - Priceless!

Happy Fathers Day to all out there.

MM




Thursday, June 12, 2008 10:20 PM CDT


Marin's final day of radiation therapy is Friday and so far, she's endured the daily treatments and side affects pretty well. When I wrote the same thing a week ago, we were hit with instant karma (bad) as Marin had a horrible night the very next evening with lots of discomfort and vomiting and very little sleep. But in the days since then, she's been moslty stable in her functions. The radiation definitely has her worn out though, tired more than usual, and she has had her bouts of vomiting, but none as bad as last week. With met with the radiology team today and they were happy with the way she's handled the treatment, with the caveat that she'll probably feel the worst of the residual affects for another week or so after the treatment finishes.

Now we're focusing on building back her strength and getting her back in the pool. Her appetite seems to be improving but she's still on the feeding tube and will need to be for a while. We're hoping that beyond the radiation, she'll begin to build more energy and thus have more abilty to ingest her food. We've been getting some terrific help from a new friend named Katrina who is a macrobiotic chef and she's made an amazing effort to provide macriobiotic and high-calorie meals for Marin. It's still a day-long process, but Marin is eating and she's gained a couple of pounds since leaving the hospital so at least we're maintaining, if not gaining, a little in that department.

One thing that is a bit difficult for us is the mixed emotions we face when Marin's friends and classmates are all in the process of graduating from high school and realizing that Marin won't be experiencing that kind of joy with her friends. Of course it's a happy time for everyone and we share the joy for the students but it's hard to see Marin relegated to the sideline as this all goes on. Oh well, she has a lot to shoot for and we're looking ahead with optimism.

Enjoying the on-set of summer,

Marin & Nancy, Matt, Camlyn & Michael.


Thursday, June 5, 2008 8:09 PM CDT


Wednesday night was an amazing evening for Marin, our family, and lots of wonderful friends in our community. The benefit dinner on behalf of Marin was a great time. The food was terrific, the entertainment was excellent and the auction was a big success. Marin was feeling good after an afternoon nap and she was really happy to see all sorts of friendly faces when we arrived. It was so nice to see many of her teammates from the Eastlake swim team that she'd been out of touch with. Lots of teachers, church friends, neighbors, schoolmates, teammates, and friends from swimming all showed up for support and the consensus is it was a really good time. Camie and several of her friends helped with the set up and support while Michael was joined by many of his neighborhood pals and several of his little league teammates at the event. A few students from Eastlake provided some great music and dancing entertainment and the dessert auction was a big hit as was the silent auction, where merchants in the community donated items such as restaurant meals, travel packages and other great gifts. Marin's own knitting creations drew some excellent bids and we were so proud of how well the evening went all together. The meal was delicious and we are so very grateful to everyone who donated their time, talent and treasure to make this a wonderful evening of fellowship and fundraising on our behalf. It's very humbling to be on the receiving end of such kindness but it's also incredibly awesome to experience the love of so many people who've rallied together for our common benefit.

Day four of radiation went okay as Marin woke up fairly early and seemed to be full of energy. She slipped on her swim suit with the intention of maybe going to the pool after her session. She ate well this morning, including some left-over salmon from the dinner last night. Everything went smoothly at the hospital, but by the time we were finished, she was just too worn out to go swimming. Oh well, maybe Friday. We'll see. Other than the expected fatigue, there hasn't been much in the way of side affects yet, so we're keeping our fingers crossed. We're looking for a break over the weekend and we wish all of you a good one, too.

Striving strong,

Marin & Nancy, Matt, Camie & Michael.


Tuesday, June 3, 2008 10:34 PM CDT

Through two days of radiation therapy, Marin is holding up pretty well. The proceedure is actually very short in duration, about 15-minutes from the time she enters the radio-therapy room, and most of that time is spent strapping her head and face in to a form-fitting mask. The lock-down allows the doctors to be precise in their radiation field. It's certainly uncomfortable, but the actual radiation only take a couple of minutes so her discomfort is brief. Of course, Marin was smiling when she was wheeled out of the room this morning, her face imprinted with the plastic mesh of the mask, looking a bit like she had a tennis racquet pressed against her face for a while. She knew she looked funny and gave me that knowing smile that always lifts the people around her. So far, she's feeling pretty good although she is tired throughout the day. Eating remains a central focus, although she is getting supplemental nourishment through a feeding tube. This has been a boost to her energy and she was actually up more that two pounds when we weighed her Monday.

Once again, the local Sammamish paper featured Marin in a very well done article this last week. The story informed everyone of Marin's recent medical setback and promoted a special fund-raiser dinner organized on behalf of Marin and our family by concerned friends through Eastlake High. In addition, Our friends and neighbors have established a fund-raising web site to help Marin and our family as she strives toward Beijing while dealing with her current medical crisis. The website is:

http://morrisonolympicfund.kintera.org

We appreciate the kindness and friendship of all involved and we appreciate the support of everyone. We're looking forward to the dinner Wednesday night at Timberlake Christian Fellowship and Marin is excited about some of her knitted hats and purses up for auction.

Looking forward to sharing friendship,

Marin & Nancy, Matt, Camlyn & Michael


Wednesday, May 28, 2008 12:25 AM CDT

For the first time in four full weeks, Marin spent the night in her own bed Tuesday. The homecoming was very terrific for her, but not without its drama. Marin was released from Children's Hospital yesterday afternoon and went straight to The U. of Washington Med Center to get fitted for a 'radiation mask'. It's an uncomfortable procedure and our discussion about actually undergoing radiation again (for her third time)was also uncomfortable for her. She's scheduled to begin treatments on Monday, but we're continuing to discuss it with her through the weekend. The upside is the hope that this can help with her dizziness. The downside is all the side affects; nausea (which she doesn't need more of), even more fatigue, and hair loss in spots where the beams go in and out. Marin's been through the unflattering hair-loss stages before and it really bums her out. Weighing all of this against the not all-that-good chance that this will do any good at all, and we have a tough decision to make. Along with all the doctors, we've given Marin a good picture of the situation and while our influence will weigh a lot, the decision will ultimately be hers. We have a little time to consider it.

So after a long day of packing up at Children's and the appointment at U.Washington, we drove home and marvelled at the beauty of the blue sky and greenery we hadn't seen much of for a month. It was good to be out, even better to be home, and Mom, Camie, Mikey and lots of neighbors made us all feel happy to be back at our house. Too bad our homecoming was quickly interrupted. While takin an evening nap, Marin woke up to use the bathroom, but was a little disoriented with our new set up. She stumbled and fell when she got out of bed, and while the fall didn't injure her, it did cause the feeding tube to be pulled up from her esophegus and out through her nose. This was scary for her and a bit painful, but nothing too serious. Still, it cost us an immediate return trip to the emergency room at Children's where we had the tube re-inserted without too much of a wait. On the way home, close to midnight, we stopped for a fish sandwhich and onion rings and Marin thoroughly enjoyed one of her first non-hospital meals in a month. Good times.

One other slice of nice news from the day was a message left on our answering machine, a call from Marin from Aaron Piersol, the Team USA swimmer that she really admires. We're going to give him a call back and connect with him soon. It was very thoughtful for him to call and Marin was very flattered and excited. We'll see how it goes.

We want to extend a big thank you to all the doctors, nurses, caregivers and un-sung heroes at Children's Hospital in Seattle who helped Marin through this crisis and all the friends, neighbors and folks all over who've expressed their love and support and who's prayers have been felt by our family. We truly appreciate everyone's concern.

There's no place like home,

Marin & Nancy, Matt, Camie and Mike


Saturday, May 24, 2008 10:38 PM CDT


The sunset beyond Seattle this evening was absolutely beautiful after a spectacular, clear blue sky day... the kind Marin enjoys so much. After a visit from Camie and Michael around mid-day lit up Marin's smile, she ended up spending most of Saturday confined to her bed. Marin was feeling better after an afternoon nap and we did spend some quality time on the hospital balcony soaking up some good sunshine. We appreciated a visit from her school therapist Debi C. and we enjoyed this time outside quietly with a little back rub from Dad (which she appreciated), a big spinach salad and an avacado. Food remains our constant companion as her weight is still dangerously low and her nutrtition intake is vital. Some days are better than others, and in general, her dizziness seems to be reasonably under control, probably due to certain medications, but the flip side is her energy is very low and she still has bouts of naseau that come and go. We did make it to the pool here in the hospital a few times this week, including yesterday when we spent about an hour just doing light exercises underwater. She really enjoys her time in the pool and is looking forward to getting back to training.

On the treatment front, it looks like she'll begin a two-week course of radiation at the University of Washington beginning on Tuesday. This is also the day her doctors anticipate releasing her from the hospital. Marin is not at all up for another round of radiation (this will be her third) but we're convinced it's her best hope of gaining back some of her quality of life for now. She'll likely experience some unflattering hair loss again so it looks like she'll spend the summer in stylish hats once again.

To pass the time here in the hospital, beyond the therapy sessions she had last week and her healthy napping schedule, we've been playing cards, gin rummy, and we've been having a lot of fun on facebook.com. Through her connections, Marin reached out to Michael Phelps and the Olympic swimming star confirmed her as one of his facebook friends. Pretty cool. Now she wants to track down Aaron Piersol. The connection with old and new friends is very fun for Marin and we always enjoy reading her guestbook entries here for her enjoyment.

Thanks, all, for the love, care, concern, prayers and support,

Marin & Nancy, Matt, Camlyn & Michael


Wednesday, May 21, 2008 8:17 AM CDT

Good Wednesday Morning,

Marin is still in the hospital and lots of talks are being held regarding bringing her home. On Monday she had a special visitor, her friend Naomi and Naomi's mom Elizabeth flew down for the day to just sit and be with Marin. Her whole face lit up. They were so great. They just sat there quietly, enjoying Marin's presence. This visit will keep a smile on Marin's face for a long time.

Another exciting thing that happened Monday is that Marin was allowed to get in the therapy pool. The pool is right in Children's hospital. The goal was for Marin just to get in, feel herself in the water and just kind of float around. To everyone's suprise, Marin took off swimming laps! The first lap went great, as well as the second. The third lap she tried to do freestyle with her face down. She got dizzy quickly, started choaking, and scrambled to the side and threw up. Nothing is going to stop our little Marin from swimming. Her backstroke, which she did for the first few laps, looked beautiful, just like Marin.

On Tuesday she got in the pool again and it went much better. The minute Marin hits the water, a huge smile splashes across her face, and she seems to sigh of relief that she's "in her element" again. I told her perhaps she's turning into a fish and that's the problem.

On the yucky cancer note, we are still trying to determine whether or not to do the radiation. The side effects could cause extreme tiredness, among many other things. they give it a very slim change of working but it could possiblly help with the dizziness which would make her comfort level so much better. We have inquired what would be best, traditional radiation or something they call protron radiation. The doc is suppose to get back today to us with some answers and they want to start as early as tomorrow.

I keep praying so, so hard for God to carry Marin to complete health. For her to be able to live out her Olympic dream seems only like it's the course she is destined to take. It's what's carrying her through her day, her dreams, and every breath.

Please keep praying for marin to heal. Also, please pray for those of us around her to be strong, just as she is and wants us all to be. As Marin tells me everyday, "Mom, you'll be alright." She is truely wiser than her years! What a great kid!!!

Swimming hard through life,
Marin, Mom
matt, Camie, and Michael


Saturday, May 17, 2008 3:49 PM CDT

Greetings from sunny seattle!!

It's actually hot and sunny here today. I only wish Marin could enjoy it. I want to take her out to the patio but she's eating now and then wants to nap. Perhaps there will still be a little daylight when she gets up. The last few days have been both productive and heartwrenching.

Rehap is wonderful for Marin and she continues to fight hard, improve her strength, and try not to barf. It gets really frustrating when she has a great day of eating and then looses all her food at the close of the day. The docs have been urging us to put in a feeding tube to try to get her to gain some weight. She spends all day eating. The chewing and swallowing have become worse. Our concerns with the feeding tube are several. Firstly, can she swim daily. Can she travel with it? They say she would be able to eat foods as well but we could pack in calories to build up her strength for Beijing. Everyone's focus is still towards Beijing, which is great.

We have finally gotten some answers to the dizziness. It's not at all what we wanted to hear but we keep pressing forward with hope, strength, and prayers for a miracle. The last MRI showed the cancers cells have gotten into her spinal fluid and some have settled onto the base of her brain stem. Nope, this doesn't sound good. The positive note is that Dr. Geyer spoke with the radiologist and they have determined that radiation to the area could help, both with the cancer and the symptoms of dizziness.

Our dear Marin is still smiling and working harder than anyone could ever imagine. She's an angel. If everyone out there would learn of her story, I believe we could all be a little better.Happy Saturday!

The rehab gang, Marin, Matt, and Nancy


Wednesday, May 14, 2008 10:35 PM CDT


Today Marin was moved to the rehabilitation unit in the hospital where it's expected she'll remain for at least a week, perhaps significantly longer. Our day consisted of eating, of course, moving out of the room we'd been in for more than a week, down the hall to the rehab unit, where we temporarily hung out in a room with another patient before getting in to a single room this evening. Lots of processing and transition interviews and a little bit of work as Marin was introduced to a couple therapists. By the time we settled in, Marin was exhausted and the real work begins Thursday.

We did enjoy the company of a few visitors today as coach Caren and a friend Frank from the masters swim group at BCC stopped by in the morning. The masters swimmers have been ultra-supportive during our hospital stay and we have to say thanks to all our friends at the Bellevue Club who've really shown great friendship through this ordeal. One of the administrators, Linda V. even presented Marin with a bottle of pool water that she can smell from time to time to keep her inspired. What a neat gift. We also enjoyed time with our friend Anita M. and Marin's teacher Ashley dropped by to do a little reading from the book they're currently sharing.

We're hoping to launch a good, strong,--if indefinite-- stay on the rehab floor, but Marin was indeed a bit sluggish today. We didn't sleep well last night and she sort of dragged herself through the day. Eating was a chore at every meal and her stamina was lacking. Still, she's a little steadier on her feet and she's doing a good job of feeding which is an important, if difficult, part of her day (times three).

Thanks, as always, for the kind notes here and on Marin's Facebook page. She really enjoys hearing from friends everywhere.

On to rehab!

Marin & Nancy, Matt, Camie & Sppidey


Tuesday, May 13, 2008 1:27 AM CDT


It's late Monday and Marin is resting somewhat comfortably after a pretty good day, all things considered. I say 'somewhat' comfortably because eventhough she was most satisfied with the outcome of "The Bachelor" and went to bed with a smile on her face, she is bothered by an annoying rig the doctors want attached to her legs when she's in bed for any length of time. Concerned that her general lack of mobility could cause blood clots to form in her legs, they've ordered a contraption that straps on to both of her legs like knee braces that extend down almost to the ankle and an air massage is pumped through every minute or two. "Annoying" is the only thing she could say. I have to admit, just hearing the thing switch on and off is bugging me. It's just a precaution, but one that makes sense.

Improvement is slow but noticeable. She's a little steadier on her feet, with more energy than she's had. We did a little walking up and down the hallway, but her stamina is lacking. The dizziness is still a huge problem, but it seemed a little more tolerable Monday. She's back to wearing an eye patch most of the time, which helps her, so... We were told today that she will likely move to the rehabilitation floor in a day or two, with no promises that they can do much for the dizziness, but perhaps they can help her function better under the circumstances.

Eating has become our focus throughout the day as we count calories and Marin does her best to ingest as much as she can. Her weight remains alarmingly low, but I get a sense her body functions are just now getting back on track and hopefully she'll be able to continue to build her appetite and build up her strength again as she does. The notes of encouragement from everyone are helping her and she's been very pleased to see friends when they drop by.

Thanks for the support,

Marin & Nancy, Matt, Camlyn, & Michael


Saturday, May 10, 2008 1:14 PM CDT


Good Day everyone,

It's Saturday morning and Marin is feeling quite good; certainly better than she has all week. Eight days out from her surgery, the recovery from the operation continues to go well, while the other issue of dizziness continues to be the biggest problem. Still, Marin seems to be able to do a little more each day. This morning, we walked a lap around the hospital ward and even ventured outside on the patio for a little fresh air. The effort was substantial for her, unsteady on her feet and fighting throuh occasional bouts of naseau, but she appreciated the challenge and felt accomplished when we returned to her room.

Last night we had a visit from our friend and neighbor Liz who is a massage therapist and treated Marin to a Shiatsu Chinese pressure point massage. This relaxed her and relieved her symptoms of dizziness and naseau to the point that she slept better than she had all week. She woke up refreshed and feeling good and her appetite was excellent. So our thanks to Liz for her kind effort to help Marin and our family.

Today we're enoying a nice visit from friends Lynette and Deb and we're looking forward to a nice day.

More Later,

Marin & Nancy, Matt, Camlyn & Michael


Thursday, May 8, 2008 11:49 PM CDT


It's been a difficult last few days as Marin continues to struggle with dibilitating dizziness and we search for the cause and an affective treatment. Right now we still don't have any firm answers, but we seem to have gained the appropriate attention of the right doctors in the group that can help. With representatives from neuro-oncology, neurology, neurosurgery, nutrition, and rehabilitation all on the case, we at least feel Marin is getting a priority attention. That being said, her struggle continues and her condition is still low on energy and slow on rehab.

Her recovery from surgery is on schedule. She had a positive CAT scan Wednesday and her drainage tube was removed. She's coming off some of the post-op pain medication so she is more alert for longer periods of time, but that only illuminates how much she's suffering in the other areas. Sitting up, standing up, and walking the little bit that she can is very hard on her and the dizziness intensifies, but she continues to try. While her headaches have decreased and her appetite has improved, she still needs a lot of help eating the right amounts of the right foods; she's lost an alarming amount of weight over the past several weeks and we're working desperately to build her back up.

Neurology has ordered an MRI to see if they can determine a source of the vertigo, so that's our immediate course of treatment. Rehabilitation will try to determine if a stay on the rehab unit will be beneficial to her right now. It's a cloudy forecast right now. We'll keep you posted on the next step, and in the meantime we are all appreciative of the notes in the guest book that help keep us connected to our loved ones and the outside world. Reading them aloud to Marin is always a hilite of our day. Thanks for the love and prayers.

Happy Mothers Day Weekend to Nancy and all the mothers out there,

Marin & Nancy, Matt, Camlyn and Michael


Tuesday, May 6, 2008 12:56 AM CDT


Good Day from Children's Hospital,

Marin's recovery from surgery is coming along, although not with the typical speed we've seen from her in the past. The good news is that her pain level is very low; her headaches have diminished but her dizziness persists. This is now our greatest concern for her recovery and we're focused on getting her the attention she needs from neurology and everyone involved that can conceivably help with this chronic problem.

For her part, Marin remains an incredible trooper but it's clear she doesn't have the stamina to rehab quite as energetically as she wants to. So far, she's only been on her feet a few times; she took some steps out in to the hall with a physical therapist here, but had to quickly retreat as her dizziness increased. That was Monday. Today, she got out of bed to sit in a chair for most of the morning and walked (with help) to use the bathroom. Again, this took a the wind out of her sails and she had to lie down to recover from the dizziness. Later she'll be seen by neurology specialists and an accupuncturist as well. We hope we can make some headway on this problem as Marin's quality of life is at stake. Thanks for the prayers and support with all of your tips and suggestions.

We'll continue to update,

Marin & Nancy, Matt, Camie & Michael


Sunday, May 4, 2008 5:46 PM CDT


We're happy to report that Marin was transferred out of Intensive Care this afternoon and is now resting in a more accommodating room on the post-op floor. She woke up this morning in very good spirits, smiling more than we've seen her in weeks. She told her doctor making the rounds that her pain was very low, a "1-2" on a scale of 1-10. Not bad about 36-hours out of brain surgery. Her appetite has been much better, she ate most of a good fish dinner Saturday night, then ate most of a good breakfast of strawberries and waffles this morning. She's drinking more and best of all, she hasn't been feeling sick to her stomach for the first time in a long time. Her neurosurgeon Dr. Ojemann gave her the clearance to move out of the ICU this morning, indicating he was very pleased with the drainage of the fluid from her cranial cavity and the improvement in her symptoms. That all being said, when Marin woke up from her mid-day snooze, she felt dizzy again, reminding us that we can never get too comfortable in recovery.

Visiting is still a little difficult as Marin tends to sleep on an irregular basis. Her coach Andy and his bride Sarah did stop by today, but Marin was asleep, so she didn't even see them. Nevertheless, Sarah left her with some chic magazines and a DVD set of the TV series "Felicity" that she thought Marin would enjoy. Our dear friend and therapist Beth H. also stopped in just as we were transferred to her new room and Marin broke out in a big smile upon seeing her.

We expect to be here for at least several more days as doctors monitor the fluid drainage and Marin's recovery post-op. Of course, we'll keep everyone posted here on how it's going. Your notes of encouragement are very important to Marin as we spend a lot of time reading them to her. It's so nice to hear from everyone we know who've been following her story and supporting us in this journey.

Recovering strong,

Marin & Nancy, Matt, Camlyn & Michael


Saturday, May 3, 2008 2:45 PM CDT

Hi!! Sorry about the long time between updates. My wireless in the room was down and I didn't want to leave Marin as we have had an extemely hard 12 hours. Things are much better now and Marin is resting comfortably.

Shortly after surgery last night, Marin was responding and moving as much as she was before surgery. It appears that no additional damage was done to her speach, movement, etc. Yea!!! Almost immediately, however, the pain set in. They were slowly administering pain meds to see what she could tolerate as far as pain and waited a little too long. I think it was the most pain I have ever seen her in. She cried more in four hours that I think she has in her whole life. They kept giving her morphine but were unable to keep up with the pain. Finally, at about 2:30, after5 hours, the meds slowly started working and her pain went from a 10 to about an 8.

I sat by her bedside and she was holding my hand extremely tight. It brought me relief only in that her grip was so tight, still so strong. They have a tube coming from the top of her head to drain liquid from brain to relieve pressure. Marin is feeling confident now that she will feel a lot better than she has in the last several months once recovered. We will remain in the ICU for several more days until they feel the risk of hemerage, etc. decreases, then move us down to another floor.

We are confident that her Beijing plans are moving ahead and she will have plently of time to recover for the Olympics. The docs say about 4 to 6 weeks until she can return to the water, and you know we will start "dry land" as soon as possible.

We know all your prayers helped Marin pull through this trying time in the last 24 hours. Prayers are so powerful.

Several days ago when I was driving Marin home from the hospital for a routine appointment, it became completely clear to me what my purpose on earth is. God gave me three incredible children. Three incredible people to raise and care for. Marin is one of those whose spirit and strength surpasses most people. Her drive, spirit, and courage are meant to be viewed by the world for us to learn, reflect, and be inspired. I am here to help her so she can do that. By me caring for her, she is able to daily show us how faith alone is enough for us to proceed forward on a daily basis. What could more honorable than to have this as my job here.

Thank you for lifting us up so we can both continue to do what we're supposed to be doing.

Happy Saturday, and Marin and I will update soon.

Marin says, "I'm fine everyone. Just resting for a while!"

Blessings,
Marin and Nancy
Matt, Camie, and Michael


Friday, May 2, 2008 11:19 PM CDT


Marin is out of surgery as of 9:10 this evening and she's back with us in the intensive care unit as of 9:30. Dr. Ojeman said the operation went well; he cleaned out the clotted blood and removed tissue areas that contained the damaged/leaky blood vessels. When she was wheeled in to the room in her rolling bed, Marin was shivering... which was a good sign because we could see that her right leg was moving. We were warned and concerned that more damage to the right side mobility could be a result, but Dr. Ojeman said he didn't take any tissue that wasn't already destroyed. After the medical team of six set her up in the room, on monitors and oxygen, she began to wake up. She gave us a nice smile when she heard mama's voice. We're very relieved and happy that she was able to respond to us and to questions from nurses, if only shaking her head. She opened her eyes slightly when asked to, and she shook her head no when asked if she was in any pain.

Our gratitude goes out to everyone for the prayers and support we are feeling tonight. Your notes of comfort and encouragement allowed us to pass the anxious hours with better levity. We know that her recovery from surgery will get a little worse over the next 48-hours before it gets better. She has a drainage tube coming out of her cranium that will be monitored for the next several days and hopefully her normal function of fluid absorbtion will kick in. We'll keep you posted.

A special thanks tonight to our wonderful friends and neighbors, particularly Val & the Gallaghers, who rallied to our help in this emergency. We love you.

For Marin,

Matt & Nancy, Camlyn and Michael


Friday, May 2, 2008 4:03 PM CDT

We just finished speaking with the neurosurgeon. Marin will be having the angiogram in about an hour followed by her fourth brain surgery. Their goal is to get the blood clot out. After removing the clot, they will put a drain in to drain blood, etc. Their hope is that within days, the blood will drain itself and they can remove it.

Marin is continuing to be brave, strong, and confident in the outcome. Even though she is in a lot of pain with a massive headache, she remains peaceful, calm, and somewhat happy. Amazing kid!!

I've been wandering back and forth to the shower for the last few hours being unable to direct my energies to take one. Marin's swim coach, Andy, is here with Marin. When he walked in, it was the biggest smile I've seen in a few days.

Please pray for the procedures to work perfectly and Marin able to recover quickly, so she can return to the pool to live out her Olympic dream.

Hanging in there,
Nancy and Marin
Camie, Matt, and Mike


Friday, May 2, 2008 4:03 PM CDT

We just finished speaking with the neurosurgeon. Marin will be having the angiogram in about an hour followed by her fourth brain surgery. Their goal is to get the blood clot out. After removing the clot, they will put a drain in to drain blood, etc. Their hope is that within days, the blood will drain itself and they can remove it.

Marin is continuing to be brave, strong, and confident in the outcome. Even though she is in a lot of pain with a massive headache, she remains peaceful, calm, and somewhat happy. Amazing kid!!

I've been wandering back and forth to the shower for the last few hours being unable to direct my energies to take one. Marin's swim coach, Andy, is here with Marin. When he walked in, it was the biggest smile I've seen in a few days.

Please pray for the procedures to work perfectly and Marin able to recover quickly, so she can return to the pool to live out her Olympic dream.

Hanging in there,
Nancy and Marin
Camie, Matt, and Mike


Friday, May 2, 2008 12:53 AM CDT

I am updating again. 1 our later. Marin has taken a turn for the worst. The docs feel that waiting or the shunt is not an option now. If time permitting, the want to do an angiogram, then followed by surgery. They are talking about doing surgery today. I will keep you updated.

Nancy


Friday, May 2, 2008 11:59 AM CDT

Hi Friends and family,

We are on day three of the hospital. Marin remains in ICU and the most recent cat-scan of 1 hour ago shows additional bleeding and swelling. Marin is becoming a lot more tired, due to a couple of things. Firstly, the swelling and bleeding. Secondly, they have been giving her morphine and tylenol to help with her pain. Thirdly, she has been laying in bed for three days.

Marin is now being monitored by the neurosurgeons. They are watching closely with daily cat-scans. Right now, there is a problem with the blood not draining properly with the spinal fluid. Please pray this starts draining properly. If it doesn't start draining properly, the docs will put a shunt, (which is a tube put in the scull to the site) to help drain the blood. This, obviously, would keep her here for quite a long time and prevent her from being able to get back in the pool for awhile.

I continue to believe in my child's strength and courage. I have yet to meet someone as strong-willed as her and so brave.

Please also pray for Camie as she is keeping her emotions internally and I know she is very concerned.

Once again, please pray for her healing so she can attend the Olympics in Beijing this August-September.

A big hug,
Nancy and Marin
Matt, Camie, and Michael


Thursday, May 1, 2008 3:11 PM CDT


On May Day...

Once again, we feel the power of love and prayers at work here. As mentioned yesterday, Marin was admitted to Children's Hospital Wednesday after a CAT scan showed she has had bleeding in her brain. The blood clot probably formed sometime over the weekend when we were in Detroit for the disability swim meet (which Marin did not compete in because she was feeling too sick). The doctors quickly made the point that they did not feel this was a life-threatening situation. Although Marin had an awful headache that did not go away after strong medication was administered, she was in control of all her faculties and was responsive to all commands, thus her doctors felt there was no new damage to healthy tissue in her brain. Rather, it seems likely that this is residual affects from the radiation last fall. When the areas that have been zapped begin to die, the areas may begin to break off, like scabs on your skin. The result can be some bleeding in the areas where the dead tissue breaks off from the healthy, and with the small amount observed, that's our doctor's best assessment right now. Marin did better overnight, with a neurosurgeon monitoring her signs and he cancelled the MRI he had planned for today, believing her improved condition indicates a stable situation, perhaps confirming the original belief that the bleeding happened several days ago and it's stopped by now. While the CAT scan clearly shows a significant bubble of blood, her doctors point out this as actually a relatively small amount of bleeding and with good fortune, it will be dissipated and absorbed in to the body through the brain's spinal fluid, which can take a while. All of this is better news, but it's still uncomfortable for Marin. She was in severe pain to the point of tears yesterday, but she's feeling much better now; her appetite seems good and she's getting fluids through an IV. She'll be monitored throughout the day and will likely be moved out of the ICU later this afternoon. Thanks for the love, support, and prayers.

Last week, after our travel to Detroit was portponed by a day when Marin became ill at the Seattle airport, we arrived in Detroit Thursday for the Disability Open meet. Unfortunately, her condition never improved enough for her to compete in her events. We couldn't even get to the pool Saturday and she gave it an incredible effort Sunday morning, but after she dipped-in to warm-up, she immediately had to get out of the pool as her entire world was spinning and her headaches had begun. Looking back, she probably had begun bleeding internally in her brain on Saturday. We stayed with our cousins EV and Lori Livingston for a night in Michigan , and enjoyed the visit as best we could as Marin was mostly too sick to get out of bed. At the same time, our dear Aunt Nell was lying in the hospital in Lansing in the final stage of her fight with cancer. Our hopes of driving up to see her were negated by Marin's condition, but our hearts are with Aunt Nell. Fortunately, we have a big, wonderful extended family based in Michigan, and she's been comforted by lots of loving relatives.

Our travel home to Seattle went pretty well, although Marin vomited right when we landed. After another day of illness, we took her to the hospital against her protests. It certainly turned out to be the right thing to do. Her toughness is an admirable trait, but it can also mask the seriousness of her condition at times. We feel fortunate in this case. We'll update here with new information as it becomes available.

Recovering Strong,

Marin & Nancy, Matt, Camlyn, & Mikey


Thursday, May 1, 2008 2:33 PM CDT


Once again, we feel the power of love and prayers at work here. As mentioned yesterday, Marin was admitted to Children's Hospital Wednesday after a CAT scan showed she has had bleeding in her brain. The blood clot probably formed sometime over the weekend when we were in Detroit for the disability swim meet (which Marin did not compete in because she was feeling too sick). The doctors quickly made the point that they did not feel this was a life-threatening situation. Although Marin had an awful headache that did not go away after strong medication was administered, she was in control of all her faculties and was responsive to all commands, thus her doctors felt there was no new damage to healthy tissue in her brain. Rather, it seems likely that this is residual affects from the radiation last fall. When the areas that have been zapped begin to die, the areas may begin to break off, like scabs on your skin. The result can be some bleeding in the areas where the dead tissue breaks off from the healthy, and with the small amount observed, that's our doctor's best assessment right now. Marin did better overnight, with a neurosurgeon monitoring her signs and he cancelled the MRI he had planned for today, believing her improved condition indicates a stable situation, perhaps confirming the original belief that the bleeding happened several days ago and it's stopped by now. While the CAT scan clearly shows a significant bubble of blood, her doctors point out this as actually a relatively small amount of bleeding and with good fortune, it will be dissipated and absorbed in to the body through the brain's spinal fluid, which can take a while. All of this is better news, but it's still uncomfortable for Marin. She was in severe pain to the point of tears yesterday, but she's feeling much better now; her appetite seems good and she's getting fluids through an IV. She'll be monitored throughout the day and will likely be moved out of the ICU later this afternoon. Thanks for the love, support, and prayers.

Last week, after our travel to Detroit was portponed by a day when Marin became ill at the Seattle airport, we arrived in Detroit Thursday for the Disability Open meet. Unfortunately, her condition never improved enough for her to compete in her events. We couldn't even get to the pool Saturday and she gave it an incredible effort Sunday morning, but after she dipped-in to warm-up, she immediately had to get out of the pool as her entire world was spinning and her headaches had begun. Looking back, she probably had begun bleeding internally in her brain on Saturday. We stayed with our cousins EV and Lori Livingston for a night in Michigan , and enjoyed the visit as best we could as Marin was mostly too sick to get out of bed. At the same time, our dear Aunt Nell was lying in the hospital in Lansing in the final stage of her fight with cancer. Our hopes of driving up to see her were negated by Marin's condition, but our hearts are with Aunt Nell. Fortunately, we have a big, wonderful extended family based in Michigan, and she's been comforted by lots of loving relatives.

Our travel home to Seattle went pretty well, although Marin vomited right when we landed. After another day of illness, we took her to the hospital against her protests. It certainly turned out to be the right thing to do. Her toughness is an admirable trait, but it can also mask the seriousness of her condition at times. We feel fortunate in this case. We'll update here with new information as it becomes available.

Recovering Strong,

Marin & Nancy, Matt, Camlyn, & Mikey


Wednesday, April 30, 2008 7:44 PM CDT

Just a quick update. Marin was just checked into the hospital. She has a bleed on her brain. We need tons ad tons of prayers that the bleed will disapate without surgery. She's a fighter!!

Thank you for praying hard.

Nancy


Monday, April 21, 2008 0:47 AM CDT

Hi Everybody,

Being able to exhale this week after better news regarding Marin's latest MRI and coming off all the excitement over making the Beijing team, we want to express our appreciation to everyone who's been so supportive of Marin and our family over what has been an incredible three years. It's been overwhelming how the care and kindness of family and friends, wonderful neighbors, kind-hearted acquaintances, friends from afar we've never met, church leaders, coaches, teammates, therapists and medical professionals have all made great contributions to our well-being. As we continue this journey going forward, we're forever grateful for the physical, spiritual, emotional and financial support that's been so helpful. All notes, well-wishes, good thoughts and prayers are received and felt in our hearts.

We'd like to acknowledge a few recent examples, among many, that have been pretty amazing. The Kneip family here in the Seattle area read about Marin and the two high-school aged sisters organized a fund-raiser called 'Cooking Up A Miracle' and reached out to swim teams across the country. The results was a very generous contribution to Marin's fund. Our cousin Charlie Schinske in Michigan dedicated his swim-a-thon funds to Marin. The same kindness was extended by Marin's former teammates at Collins Hill High in Lawrenceville, GA. Swimmers and parents worked together in a fundraiser, and sent us a significant contribution. A benefactor from Arizona recently sent a check that amazed us. The Bellevue Club here in town has continued to support her training by allowing her access to the pool, and the good folks at West Coast Aquatics have taken her in and been very pro-active in helping Marin reach her Paralympic dreams, thanks a great deal to coach Andy Hay. Just as we did in Georgia, we have a wonderful group of fantastic neighbors here in Washington, with some of them starting a fund to help us with Beijing expenses and we're truly awed and humbled by these acts of kindness and generosity. Our friends at Sylvia's Swimwear in Bellevue donated racing suits and goggles for Marin going to the Paralympic Trials. Among the expenses we're dealing with now is getting her a new wheelchair that's better suited for her athletic pursuits. Thank you, thank you, thank you.

So now we continue with the living, swimming strong, and planning for Beijing. It's been an up and down week for Marin as she's felt alternately good enough to train hard, but also having days where she's too dizzy to get much done. We continue to try to figure out how to deal with the dizziness and nauseau that comes and goes. And still Marin takes each day with a positive approach and a big smile. On Friday, she was interviewed by Steve Kelley, the lead sports columnist for the Seattle Times. He does terrific work, and we're looking forward to the piece. This week we are going to Michigan where Marin will compete in the Disability Open in Ypsilanti. She's looking forward to racing again and we're excited for her.

Enjoy every day,

Marin & Nancy, Matt, Camlyn & Michael


Sunday, April 20, 2008 9:34 AM CDT


Hi Everybody,

Being able to exhale this week after better news regarding Marin's latest MRI and coming off all the excitement over making the Beijing team, we want to express our appreciation to everyone who's been so supportive of Marin and our family over what has been an incredible three years. It's been overwhelming how the care and kindness of family and friends, wonderful neighbors, kind-hearted acquaintances, friends from afar we've never met, church leaders, coaches, teammates, therapists and medical professionals have all made great contributions to our well-being. As we continue this journey going forward, we're forever grateful for the physical, spiritual, emotional and financial support that's been so helpful. All notes, well-wishes, good thoughts and prayers are received and felt in our hearts.

We'd like to acknowledge a few recent examples, among many, that have been pretty amazing. The Kneip family here in the Seattle area read about Marin and the two high-school aged sisters organized a fund-raiser called 'Cooking Up A Miracle' and reached out to swim teams across the country. The results was a very generous contribution to Marin's fund. Our cousin Charlie Schinske in Michigan dedicated his swim-a-thon funds to Marin. The same kindness was extended by Marin's former teammates at Collins Hill High in Lawrenceville, GA. Swimmers and parents worked together in a fundraiser, and sent us a significant contribution. A benefactor from Arizona recently sent a check that amazed us. The Bellevue Club here in town has continued to support her training by allowing her access to the pool, and the good folks at West Coast Aquatics have taken her in and been very pro-active in helping Marin reach her Paralympic dreams, thanks a great deal to coach Andy Hay. Just as we did in Georgia, we have a wonderful group of fantastic neighbors here in Washington, with some of them starting a fund to help us with Beijing expenses and we're truly awed and humbled by these acts of kindness and generosity. Among the expenses we're dealing with now is getting her a new wheelchair that's better suited for her athletic pursuits. Thank you, thank you, thank you.

So now we continue with the living, swimming strong, and planning for Beijing. It's been an up and down week for Marin as she's felt alternately good enough to train hard, but also having days where she's too dizzy to get much done. We continue to try to figure out how to deal with the dizziness and nauseau that comes and goes. And still Marin takes each day with a positive approach and a big smile. On Friday, she was interviewed by Steve Kelley, the lead sports columnist for the Seattle Times. He does terrific work, and we're looking forward to the piece. This week we are going to Michigan where Marin will compete in the Disability Open in Ypsilanti. She's looking forward to racing again and we're excited for her.

Enjoy every day,

Marin & Nancy, Matt, Camlyn & Michael


Wednesday, April 16, 2008 1:40 PM CDT

Good Afternoon,

Sorry it took me a few days to write again.

Firstly, great news!! Marin's MRI looked a little better than the previous month. It really is an answer to a prayer! The report read "stable" with a slight decrease in enhancement. This leans towards the belief that the growth is really radiation damage that will slowly dry-up and disolve into the the "other stuff." The docs said we could try to come down from the steroids although Marin has been dizzy for the past few days making me a little weary of doing this. The swelling in her face has become noticable and is bothering her tremendously so trying to get off the steroids would be optimal.

The docs were filled with joy, as all of us are, regarding Marin making the Beijing team. They feel fully confidant that Marin will make it there regarding her health issues. They first are going to travel us to Okinawa, Japan for a few weeks and there is wonderful medical facilities available there with the US Naval Base. We just have to all keep praying for her swelling to decrease, the dizziness to stop, and her feeling good again so she can go there and have the swim of her life.

Even though Marin was dizzy yesterday, we did make it to the Bellevue club and swim. She continues to look beautiful and strong in the water and has a smile that fills up the whole pool.

Today the dizziness increased so we have been laying it low and I have been making her soup, pasta, etc while she sits with her eyes closed and knits.

The weather here is cold and rainy. We are hoping for warmth and sun.

Have a wonderful day!

Marin and mom
Matt, Camlyn, and Michael


Monday, April 14, 2008 2:09 PM CDT

Good Monday Afternoon,

I appolgize we haven't updated the site in a week. I think we're all recovering from the excitement. Firstly, thank you so much to all of you whom sent flowers, cards, ballons, well wishes on the site, food, etc. Marin so deserves each and everything she has received these last few weeks. I can't even begin to tell you how more and more the hero in her exceeds any expectations that I couln't have even dreamed of.

The last week Marin has continued to swim daily feeling good and working ######### Friday she started feeling dizzy and by Saturday was throwing up, etc. I don't know what I allow to let it effect me so much but I just fall apart these days when she is sick like that. The intensity of her spinning and vomiting is almost too much to bear. For Marin, on the otherhand, she just works through it to proceed to the next day.

On Sunday we went swimming with Kiko, one of the Paralympic Coaches and a visiting coach. She had a great time even though the first half she was dizzy.

Matt, living in Washington DC, had his brother Ed come out and visit him and the two of them did up the town in DC. I think they had a nice time and got to visit with some cousins also.

Today Marin and I are at the hospital getting an MRI. I will post again this evening to let everyone know what's going on in her little brain. Please pray hard for her recovery and for these symptions not to be cancer.

Thanks and yea for Marin!!!!!

Big hugs, Nancy, Marin and the gang


Sunday, April 6, 2008 3:58 PM CDT


Beijing it is!

What a day it's been. We are awed to be able to tell everyone that Marin will represent the USA as a member of the 2008 Paralympic Swim Team in China this September. We gathered with other swimmers and supporters this morning at the Aquatics Center in Minneapolis where the team announcement was made. When Marin's name was announced, we were all amazed and overjoyed while Marin was absolutely thrilled. She walked up to the front of the room to take her place among her USA teammates and was beaming with a smile that will never fade. Along with coach Andy, and coach Kiko who is also US Team coach, we all had tears in our eyes as we witnessed Marin realize her dream of making it to the 2008 games. She stated that as her goal, even after she was diagnosed with brain cancer, and even when she was stricken with paralysis after surgery. And against some pretty incredible odds, Marin has done it. We're obviously so very proud and happy for her, and today, frankly, we're a bit blown away.

Since that moment it's been a whirlwind. After the announcement where each team member was introduced and given a USA hockey jersey with their name and 08 on the back, we began the process of getting ready for the long journey by filling out piles of paperwork. We are submitting two sets as Nancy has been named as a special assistant to the team and will travel along with Marin every step of the way. We were excited to learn that the team's pre-Olympic camp prior to the games will be held in beatuiful Okinawa, Japan (here we come, Oki Swim Mom) and not Korea as was previously stated.

The announcement was followed by a nice photo opportunity for the media and families and the happy, smiling faces of everyone in the room was just wonderful. Then, after a brief pause to check out of the hotel, the team was loaded on a bus and taken to the Minneapolis Metrodome where the US Paralympic Swim Team was honored before the game between the Twins and the Royals. Everyone on the team (including Nancy) surrounded the pitchers mound while a video ran on the stadium big screen TV's. Then one member, Justin Zook, threw out the ceremonial first pitch for the baseball game and the crowd gave the US team a standing ovation as they left the field, with a few of the Royals giving them pats on the back. It was a really cool scene and we were so proud that Marin was a part of it.

From the ballpark, it was quickly off to the airport where our friend Brett Cohn was a hero getting Marin & Nancy to their flight on time. Without much time to begin spreading the good news, calls and text messages of congratulations started coming in. We are so appreciative of the love and support and as we continue on this amazing journey with Marin. It's been a whirlwind weekend and we're all still spinning a little bit.

Thanks for being with us,

Marin & Nancy, Matt, Camlyn & Michael


Saturday, April 5, 2008 9:09 PM CDT


Well, the competition here at the Paralympic Trials was completed today and overall Marin had a good meet. Today, on the final day of competition, Marin was scheduled to swim in two events: the 200-meter Individual Medley and the 100-meter Freestyle (which she swims on her back). She awoke feeling well; ate a decent breakfast and after arriving at the pool, she warmed up well. But after getting out of the pool, Marin was hit with a bad case of the spins and started to feel really sick. The end result is she could not get in the pool for her 200-IM and had to apply for a medical scratch from this event, something that is not taken lightly and the commitee considers closely. Marin was both hurting and at the same time upset about her inability to compete.

After sitting in a darkened corner with her eyes closed for a little more than an hour, the time came to decide if she could swim the 100-free. After discussing it with us and consulting with coach Andy, Marin decided to give it a try, feeling better but not knowing if she could complete the race. She had tears in her eyes at the start of the event, and we told her to simply start and then grab the ropes if she couldn't complete her swim; this would result in a DQ but not a no-show scratch, which is much worse. So Marin swam the 100-free in the prelims, gutted it out to complete the race in a time that was some 8-seconds off her best mark, and still qualified for the finals in second place for her classification.

After a good lunch (blackened Mahi-Mahi sandwich & broccoli, plus s plurge on tater-tots) and an even better afternoon nap, Marin returned for the evening finals feeling much better. And her performance showed it. She swam the 100-free style (on her back, starting in the pool) in 1:48.36, about two seconds off her best time but almost 4-seconds faster than in the morning. She won the finals for her classification and received her second gold medal of the trials. This was a really nice way to end the competition, but we remain uncertain about her status for Beijing. We will learn Sunday morning at 9-am CST whether Marin has been selected to the team. We have done some preliminary calculations, and according to our investigation, Marin is right on the margin of making the team. We won't know until tomorrow, so we're going to sleep with a lot of anxiety this evening, as we know many of you are as well. We'll update at the first opportunity on Sunday.

All the best,

Marin & Nancy, Matt, Camlyn & Michael


Friday, April 4, 2008 7:51 PM CDT


Hi Everyone,

The news here from the Paralympic Trials is good, but not great. To begin with, Marin felt relatively good this morning and we're very thankful for that; she still has some dizziness and double vision, but she was doing well when she woke up and she ate a good breakfast before going off to the pool. On her first day of competition here, she swam her best event, the 50 meter backstroke. While she swam better times in earlier events that didn't count as official times, her American record mark going in was 50.46 seconds. Her best time is 49.28 and she was looking to drop in to the 48-second range in order to reach the US Elite Team standard and move up into the top-5 in the world rankings, which would all but assure her a spot on the Paralympic Team for Beijing. So... this morning in the preliminaries, Marin hit the water and swam a very good race. She won her heat by a wide margin and clocked in at 50.12 seconds. On the books, that's a new American record. We were awed by her performance, especially considering how she's been feeling for the past few weeks and how difficult her preperation has been. Marin was pleased but not truly thrilled because she knew she needed a lower time to clinch a spot on the Beijing team. Still, she had another shot in the evening finals, and again she swam a very good race but clocked in at 50.16 secods, 4/100ths slower than the morning. This time, Marin was disappointed even as the rest of us continued to be very impressed by her courage and performance under such difficult circumstances. Her better time in the morning moved her from 7th to 6th in the current world rankings and could help her make it to Beijing, but now it seems like a long-shot and we have to sweat it out over the weekend. The team will be selected by a panel of USOC officials that will try to pick the 20 women that have the best chance to win the most medals in China. We would say that Marin is unofficially 'on the bubble'.

Saturday she swims in two other events that she's not as highly-ranked in the world. She'll swim the 200-meter Individual Medley, then later the 100-meter Freestyle. We'll see how that goes and perhaps she can help her case with the panel by making a good showing. Frankly, we just want her to feel better and be able to enjoy the experience. We believe she is better, and although her competitive spirit is a little disappointed, she seems to be having a good time when she's not feeling sick.

Marin enjoyed meeting an old friend of Matt's, Brett Cohn who lives here in Minnesota and his 6-year old daughter Alexis who came to the evening session wearing their "Super Marin" Wave of Courage T-shirts. That was a terrific gesture for the Cohns to show up in support.

Friday night will be low-key; eat in and get some great sleep for another great performance Saturday. Thanks for the love, prayers and support.

Swim Strong!

Marin & Nancy, Matt, Camlyn & Michael


Thursday, April 3, 2008 4:18 AM CDT


Hi Everyone,

We can't even begin to express how much we appreciate all the notes of encouragement that we read here in Marin's guestbook every day, particurly this week. She had a good day Wednesday, spending most of her time simply relaxing and getting rest, or doing her best not to feel sick. On this day it was a success.
Marin's most troublesome issue right now is simply feeling well; she wakes up dizzy and does her best to take in the nutrition she needs daily. But she continues with an amazingly good attitiude. Marin received a care package that included some wristbands that are designed to off-set her naseau and while it's early, we choose to believe they're working. She's also wearing an eye-patch to compat her symptoms of double-vision. It's not flattering, but it's helping. Right now it's all about feeling as well as she can... the plan is to rise early Thursday, get to the pool as she'll need to Friday, get acclimated to the early schedule, and do her best.
The excitement of the event is intoxicating and we are all enjoying this lifetime event. We have a great appreciation for the fact that so many others are coming along with us and riding the emotional waves with us. Please know we are honored to share this all with you.

All the best,

Marin & Nancy, Matt, Camlyn & Michael


Tuesday, April 1, 2008 7:52 PM CDT


With the aftermath of a spring blizzard all around, Marin & Nancy are getting acclimated to Minneapolis and the Aquatics Center where the Trials get underway Thursday, although Marin won't be competing until Friday and Saturday. Over the last two days she's been going to the pool and while still feeling dizzy, she's gotten in for some good laps and is feeling good in the water. She's having a tough time getting around out of the pool, her dizzy spells are almost constant, but when she's in the water she looks good. Coach Kiko has arrived and along with the US team coaches, they've commented on how well Marin seems to be swimming. Perhaps she's actually turning in to a fish. Her coach Andy is helping her get prepared and we're all looking forward to the weekend.

In the meantime, she's been trying to take care of herself and feel better. A couple days of chilling out in a hotel room can be helpful, but unfortunately after swimming earlier today, Marin had a tough day with the dizziness and naseau keeping her restless for most of the day. This is very difficult on Nancy who's trying to keep her comfortable and getting her nutrition while Marin continues to feel bad and can do little but rest with her eyes closed because of the dizziness. It hasn't been a good day, but she continues to keep a good attitude and looks forward to feeling better tomorrow.

Thanks for the well-wishes and suggestions to remedy her condition. We're always looking for anything that can help, so all thoughts and recommed=ndations are always welcome.

Hoping for better days ahead,

Marin & Nancy, Matt, Camlyn & Michael


Sunday, March 30, 2008 6:23 PM CDT


Hi everyone,

We're requesting a little extra prayers for Marin this week as she prepares for the Paralympic Trials in Minneapolis. She hasn't been feeling very well and we're hoping she can have a good week and compete well on Friday and Saturday. Nancy and marin arrived in Minneapolis this afternoon and after a good flight, Marin became very ill upon landing. She had an extreme case of dizziness and nauseau and couldn't deplane until paramedics came to her aid. She was given IV fluids and Zofran, an anti-dizziness drug that we've used when necessary over the last few years. She took the IV while laying on a couch in an airport lounge and began to feel better, but she remained there for a few hours taking a nap. The EMT responders suggested this could be a reaction to her vertigo complicated by dehydration from the flight, which makes sense because Marin doesn't drink as much as she should on a daily basis.

Naturally, this whole scene was very difficult for Nancy but she was well-composed when she relayed the story. Thankfully, our swim team friends Nancy Kaplan and her family were on the same flight and they were able to help the cause. They're staying in the same hotel so they've been able to be very helpful and they're getting around together. We appreciate Nancy and Bob's help a great deal.

Cammie and Micheal are spending spring break visiting their cousins in Southern California and they're having a wonderful time. I'll be joining Marin & Nancy in Minneapolis for the trials at the end of the week. Thanks for your love, prayers, and support.

Have a good week,

Marin & Nancy, Matt, Camlyn & Michael


Thursday, March 27, 2008 10:50 AM CDT


Hi Everyone,

Thanks for all the nice prayers, well-wishes and entries in Marin's guestbook over the Easter weekend. We had a nice holiday and Marin has been feeling relatively well. While she continues to struggle daily with dizziness, the medications seem to be helping. We're consulting with some specialists to see if there are some other affective approaches other than drugs. Marin has been doing her best to keep up with her training, but the meds take a lot out of her; she's more tired than usual, and on many days she has a hard time completing her therapy of school work. Still, she tries hard everyday and Marin always enjoys her time with her teachers and therapists.

In the pool, she's working with Coach Andy on a training program to get her ready for the Paralympic Trials next week. She's very excited and very nervous about the big meet. We'll be traveling to Minneapolis early in the week to allow her to get adjusted with the competition over the weekend. We're praying for a good week health-wise and the rest will simply have to take care of itself. We're looking forward to an exciting week and the biggest meet in Marin's swimming career so far. Thanks for the love and support.

Swim Strong,

Marin & Nancy, Matt, Camlyn & Michael


Thursday, March 20, 2008 10:48 AM CDT


Hi Everybody,

Marin went in for her MRI Tuesday and we had to wait until late yesterday to get a full assessment by her doctor and the tumor board. As has been the case for several months, there's areas of concern around the tumor cavity, but there remains uncertainty if this is cancer growth, swelling from radiation, or just what we're seeing. There is indication of edema, or swelling of the brain, which may likely be a cause of her symptoms of dizziness and naseua, which she continues to feel. Marin has been on medication to relieve her symptoms and there has been improvement, but she feels overly fatigued from the meds and we don't want to simply continue throwing drugs at the problem.

The better news is she continues to feel better and she's been keeping her food down, so our concerns over her nutrition are being relieved a little bit. She is swimming everyday and her training has been going a little better this week. Through all this, Marin remains cheerful inspired by her opportunity to swim at the trials. The notes of encouragement we read here are very helpful in getting us all through some of the tougher times. Thanks for your concerns and we appreciate the prayers... they are felt by our whole family.

We hope everyone enjoys a wonderful Easter weekend,

Marin & Nancy, Matt, Camlyn & Michael.


Tuesday, March 18, 2008 12:44 AM CDT


Hello everyone,

While Marin has been feeling and functioning better over the last week, we still have a lot of concern for her general health right now. The dizziness and naseau that's thrown her off track over the past several weeks has lessened, but she still feels off on a daily basis and we're trying to understand just exactly what is making her ill. Thankfully her naseau has been rare and she's doing much better keeping her food down. At the same time, her appetite isn't all that strong so we continue with the daily struggle of getting her to ingest as much nutrition as possible.

Still, Marin is doing her best to keep up her training, although at this point she hasn't been able to have an all-out, worry-free work-out in the pool for a few weeks. She makes a good effort at it almost every day, but most of the time she's either dizzy when she arrives at the pool and needs to take time before she begins, or she feels dizzy toward the end of her swim. We only hope and pray she'll continue to get better in time for her Paralympic trials coming up the first week in April.

On the bright side, she's felt good today as she goes in for her monthly MRI. She could certainly use some stron ptayer support once again as we continue to monitor the tumor cavity and the areas around the lining that may or may not be growing. We'll know more once we see the pictures and after the tumor board doctors meet to confer on the results tomorrow afternoon. Thanks for the support and we'll keep you posted.

Praying for the best,

Marin & Nancy, Matt, Cammie & Michael


Wednesday, March 12, 2008 11:57 AM CDT


Hi everyone,

It's been a rough couple of weeks as many of you know, but with good hope we're feeling that things are improving for Marin. Since her stay in the hospital last week she had a slightly better weekend. She was still feeling dizzy several times during the day on Friday. Her doctor then prescribed valium, a common medication to fight vertigo, and while we aren't thrilled to simply throw drugs at the problem, it has seemed to help her dizziness, at least the severity of it.

Over the weekend she felt a little better on Saturday morning and made a game-effort to get back to her training. We went to the pool to meet coach Andy. She started feeling car sick and by the time we reached the pool, she was not feeling well at all. Still, after some time sitting still, Marin made the effort to get in the pool and get in a workout. Great effort, but she was too dizzy to swim more than a few laps, so we called it a day and went back home. More than anything, Marin was disappointed because her training has been thrown off track for a week and she really feels she needs to work out. The better news over the weekend is that she did not vomit at all (although she felt close to it a few times), we'll take any victory we can get at this point.

On Monday, we demanded to have her seen by the neurology department, which had been saying she couldn't get an appointment for six weeks. She spent the morning in with the doctors who examined her thoroughly and would be consulting with her oncologist today. We're waiting to hear their opinions later today. We'll keep you posted. In the meantime, she's giving it a go in the pool today. She's still dealing with some mild dizziness and the affects of the valium have her even more fatigued than usual, but our Marin is determined and we continue to be awed by her will to get the most out of her day. Thanks for all your concern, prayers, and well-wishes.

Love,

Marin & Nancy, Matt, Camlyn & Michael


Wednesday, March 5, 2008 6:49 PM CST


Thanks for the well-wishes on Marin's behalf. We're happy, but cautious, as we report that she's felt better today. She spent all-day resting... no workouts or any such schedule keeping. Marin must have been exhausted because she slept until almost noon. She did have a good appetite though; she ate well and kept everything down. She's spent the day relaxing with her knitting and reports feeling good. We're trying a medication called meclizine and so far it's been a good day. We'll keep you posted on this as we're never too confident. We shall see. Thanks again for the love & support.

Marin & Nancy, Matt, Camlyn & Micheal


Tuesday, March 4, 2008 9:03 PM CST


Hi again everyone,

Well, it was a tough day as many of you know but Marin was released from the hospital late in the afternoon without any real revelations on the cause of her problems. She was dizzy and vomiting very badly this morning prompting Nancy to call 911. Marin was taken by ambulence to Children's Hospital where she essentially underwent observation all day. She had a CAT scan that didn't reveal anything new. She was examined by Dr. Geyer and also the head pediatrician on the staff. We thought (even hoped) it might be an inner-ear problem, which would explain her symptoms, but none of the doctors found anything that would indicate this is the case.

So after a long day without a resolution, Marin was feeling better, but still a bit dizzy. She returned home with Nancy who was given a touching compliment by the head pediatrician who said she's the most amazing mother she's ever encountered at the hospital. That's quite an endorsement. It was suggested that we try an antihistimine called Meclizine, so that's what we'll try next. Thanks again for the prayers and support.

Needing rest,

Marin & Nancy, Matt, Camlyn & Michael


Tuesday, March 4, 2008 4:14 PM CST


Hi everybody,

It's been a rough week for our dear Marin who continues to have bouts of dizziness and nauseau and this morning she was so weak, disoriented, and vomitting that we called 911 and she was taken to the hospital by ambulence. The doctors at Children's hospital are having a hard time diagnosing the problem, but it's just not getting any better despite numerous tries with various prescriptions, etc. She'll have a good day, but then a lousy one... she might feel fine in the early part of the day and get sick later, or visa-versa. It's time that we got this figured out because she needs to be able to feel well and keep her food down. When she's feeling good, she's fine... we all enjoyed a nice weekend together and she swam hard in her training.

Right now the doctors are trying to determine if there's a chronic inner-ear problem that could be the cause of all this. She's getting IV's and resting. We'll keep you updated as we get the information. Thanks for your love and prayers.

Marin & Nancy, Matt, Cammie & Michael


Thursday, February 28, 2008 10:55 AM CST


Marin continues to move forward swimmingly, although she still has occasional issues keeping her food down. We remain concerned, but we're definitely seeing improvement. We've met with a nutritionist and another doctor to try to dignose the problem and it may be as simple as eating a certain kind of cereal to settle her stomach first thing in the morning, or changing the order in which she eats certain foods. In any event, Marin continues to rise and shine cheerfully and swims every day with earnestness and focus toward the upcoming Paralympic trials in April.

In speaking with her oncology team after the tumor board examined her latest MRI, we have little that's fresh to report. The tumor board is a group of pediatric oncologist from across the country that conference and share cases and information on a weekly basis. Again this time, the consensus is that there are areas of Marin's tumor cavity that remain a concern and that some swelling or growth can be noted, but this is the same area that was radiated a few months ago, so it's reasonable to believe that this is swelling that related to that. We'll hope that's the case, and look at it again in March. Enjoy the extra day in February.

Happy Leap Year,

Marin & Nancy, Matt, Camlyn & Michael
(Happy Birthday Dad)


Sunday, February 17, 2008 7:46 PM CST


Thanks for all the well-wishes on Marin's MRI and her swim in the HS state meet. Saturday night in Federal Way, she competed in the disabled 50-yard freestyle as the only girl at the entire meet. She represented Eastlake High and raced against six others in the event, all boys, and she took fifth place out of seven. Marin swam the 50 on her back, starting in the water so she didn't have the benefit of a racing start, and she clocked a very good time of 43.24 seconds. She was very pleased with a strong performance, and so was her coach Andy. We were concerned that she might not have a great night because she hasn't been holding food down lately. But Marin came through in the clutch and she was very happy.

Our friend and one of Marin's therapists Beth H. went along for support and brought her husband as well. Beth took some really nice pictures and we've uploaded them on the pictures page (which hasn't been updated in a while, but we're starting to get this figured out). Enjoy the photos and our thanks to Beth for her friendship and photography skills. Have a great President's Day.

Marin & Nancy, Matt, Camie & Michael


Sunday, February 17, 2008 7:20 PM CST


Thanks for all the well-wishes on Marin's MRI and her swim in the HS state meet. Saturday night in Federal Way, she competed in the disabled 50-yard freestyle as the only girl at the entire meet. She represented Eastlake High raced against six others in the event, all boys, and she took fifth place out of seven. Marin swam the 50 on her back, starting in the water so she didn't have the benefit of a racing start, and she clocked a very good time of 43.24 seconds. She was very pleased with a strong performance, and so was her coach Andy. We were concerned that she might not have a great night because she hasn't been holding food down lately. But Marin came through in the clutch and she was very happy.

Our friend and one of Marin's therapists Beth H. went along for support and brought her husband as well. Beth took some really nice pictures and we've uploaded them on the pictures page (which hasn't been updated in a while, but we're starting to get this figured out). Enjoy the photos and our thanks to Beth for her friendship and photography skills. Have a great President's Day.

Marin & Nancy, Matt, Camie & Michael


Friday, February 15, 2008 8:36 PM CST


Thanks as always for the love, prayers and support. Marin underwent her monthly MRI today, and as has become the norm, we're sweating out the official reading of the results. An overview indicates there are areas of concern around her tumor cavity where parts measure larger than they did a month ago. Our hearts skip a beat when we see this, but at the same time we try to stay optimistic as this is preliminary reading of her MRI. We'll wait for the official reading from entire tumor board next Wednesday, and hope for an optimistic approach. It doesn't make the weekend any easier. We understand that Marin is not cancer free; we only hope that it can be contained.

On the bright side, Marin will be swimming in the Washington State High School Championships Saturday night in Federal Way. She's nervous about competing against likely all boys in the races, but she performed great at this meet last year and we're sure she'll do great. We'll post tomorrow on how she does.

Have a great weekend,

Marin & Matt, Nancy, Camie & Mike


Tuesday, February 12, 2008 1:34 PM CST


Hi everyone,

Since returning from vacation and getting back to everyday living, we've been very busy. Marin is back in to full training mode, working hard with coach Andy as she tries to get in peak condition for the Paralympic trials the first week in April. Last weekend, Andy and his wife Sarah, who's also a coach and works with Marin, took underwater video of Marin's strokes and identified some key details to work on. It's really neat that they've taken a very detailed approach to her training and have embraced very seriously Marin's goal of earning a spot on the Paralympic team for Beijing. On Sunday, Andy organized a fundraiser at a local restaurant where the proprietor pledged a percentage of his gross sales for the afternoon to Marin's fund. Very, very cool.

Marin is still having some eating issues as we're trying to figure out why she tends to becaome nauseaus shortly after her workouts. She takes a long time to ingest her food, so it's always a big part of her day simply to finish eating. We're trying to find a nutrtionist to help us perhaps with her combinations of foods and maybe the different times of take certain types of nutrition. In the meantime, she's happy and healthy and working hard on her lessons with Ashley.

We had a great time celebrating Michael's birthday twice last week. There was his actual birthday on the 5th. And then we celebrated with his friends on Friday night with a birthday party at Chuck E Cheese. Everyone had a fun time, especially Michael who enjoyed playing all the games with his little pals and his Dad too.

Here's to a good week,

Marin & Nancy, Matt, Camlyn & Michael


Saturday, February 2, 2008 8:56 AM CST


Home from the Grand Cayman, we arrived tanned and rested Wednesday night after almost a week in paradise. We had such an amazing time thanks to the wonderful people at the Grand Cayman Rotary Club who made sure we saw all the sights and experienced the island hospitality to the fullest. Even with a full schedule, we had plenty of time to relax in the sun on the beautiful beach and swim in the amazing blue carribean sea. Just off the shore, the snorkeling was terrific with many brightly colored fish swimming right along with us. Marin was a little reluctant to get in over the rocky shore line, but with help from Dad it went fine and once she was in she really enjoyed herself. Our time on the island was wonderful and we created memories of a lifetime.

Of course, getting back to real life is always a little tough after a vacation but everyone was back to the grind Thursday morning. From sand and surf to ice and cold, the transition was stark, but that's life. Marin was back in the pool at the Bellevue Club and although she did some workouts in Cayman, she really felt good getting back in the proper size pool and digging in to her training regimen that has been put in place by her coach Andy who's really been terrific. In fact, he organized an upcoming fundraiser at a local restaurant to help support Marin's travel to the meets she needs to swim in. We feel very fortunate that Andy has taken such responsibility in Marin's training. We're looking forward to next Saturday when she will swim in the state High School meet in Federal Way. This year, the disability events will take place during the boy's state meet, so Marin may be the only girl competing that day. She really looks forward to competing so this should be a fun week.

As always, thanks for the love, prayers and support.

Marin & Nancy, Matt, Camlyn & Spi-diddy (who really has taken to his new nickname)


Saturday, January 26, 2008 7:03 PM CST

Greetings from day 2 of paradise!!

This has to be the most beautiful place on earth! The people are some of the nicest people as well. First thing we learned is the pronuciation of the word Cayman. It's pronounced like Caveman, but Cay-man, with the emphasis on the second syllabol.

Yesterday we woke up to a spectacular view of Seven Mile beach out of our third story balcony condo. The water is green-blue with the sand as white and fluffy as clouds. We sat on the beach, watching the rolling surf, catching lots of rays, and swimming in the beach-side pool. We ate lunch and dinner on our balcony over-looking the ocean.

Today we had a very busy day starting out with being picked up by "Dexter" who has a beautiful boat. He took just our family out on a cruise to "Stingray Bay." O.K., everyone ready. We were let off the boat in the middle of hundreds of stingrays to swim, play, and hold them! They are really very calm creatures of the sea and only freak out when you freak out. We remained calm and they swam around us, rubbing themselves on our skin. We even kissed them as they looked eye to eye with us.

Right when we approched the stingrays, we were greeted by the Cayman Island Police for something I will never forget. One of the police officers climed upon our boat and presented Marin with a plaque from the Cayman Island Police force. He then sang a song which brought tears to all of our eyes how God is watching, healing, and loving Marin. I am still speachless.

We then traveled back to land and returned to our condo to enjoy a lovely lunch on the balcony.

From there we visited the Turtle Farm and got to pet, play, and hold sea turtles ranging from little babies to ones that looked way over 100 years old. Again, an experience of a lifetime. We are now getting cleaned up to go eat dinner at a highly reccomended place.

I must admit this peace myself and the rest of us are finding here is something that was needed to re-fuel and press onward. The world and it's many people are something we need to appreciate and thank God for daily.

Beyond content in the Caymans,
Marin and mom
Matt, Camie, and Spy-diddy


Thursday, January 24, 2008 10:08 PM CST

Hello All! After a rough start this morning, we have safely touched down in paradise!!

Today we came to the Grand Cayman Island. We arrived at the airort at 5:00 a.m. for a 6:00 flight. When I got to the counter, I realized I was missing Marin's passport! We called our neighbor, Yvette Cook, and she took off on an almost impossible mission to get Marin's passport from our house and arrive at the airport in 1/2 an hour. Well, Super Yvette made it, with the passport, and we got on the plane with about 4 minutes to spare.

The rest of the day went smoothly first going to Chicago, then Miami, the arriving in the Grand Caymans at around 7:30. The Rotary Club was there with all it's officers to great us and smoothly take us through customs without any hassles. We then went out to the parking lot and a white, stretch-lemo was waiting to take us to our condo. You can only imagine the kids excitement as we rode through town in this beautiful car. Camie and Michael were doing back-bends, playing catch with their travel pillows, and pretending they were movie stars. Marin and I sat and laughed.

Next we arrived at the condo to be once again greeted by the lovely people we met at the airport and they showed us into the condo where a fully stocked kitchen awaited. There were also numerous gifts covering the table including a beautiful floral arrangement. A big Welcome banner was hanging over the sliding glass door which takes you out to view paradise. We overlook a beautiful pool, perfect for Marin to swim in, and only feet beyond that is the ocean.

This is truely an experience of a life time. Marin fits in here like a fish in water.

Swimmingly dreams,
Marin and the Morrison gang


Monday, January 21, 2008 2:47 AM CST


The last several days have been eventful. Marin underwent her MRI and PET scan last week and the results were somewhat inconclusive but we positive for the most part. The MRI showed the area that was radiated last fall was swollen with what could be tumor growth but is just as likely to be the result of radiation at work. There was other spots within the swollen area that were clearly dead or dying and the panel of doctors that looked at the scans were all in agreement on this. Bottom line, we continue to watch with caution but have reasons to be optimistic that her treatments are having a good affect. Thanks for all the prayers that are surely helping Marin in her struggle.

She remains positive and upbeat and she took her good attitude with her to the pool for a meet Thursday through Saturday. Her coach Andrew Hay from Eastlake HS entered her in this one and he took her to and from the pool Saturday. She swam Thursday in the 50-fly but didn't take a time as she lost her cap & goggles on her dive and couldn't recover. She swam a good time in the 50-free on Friday, just about her best, but didn't lower it any. And then she swam a little better in her 50-backstroke on Saturday. Our thanks to coach Andy for helping Marin in her training and getting her in to this competition and taking her there over the weekend.

Camie & Michael continue to enjoy school and their activities which include skiiing at the local slopes on Saturdays. Mike is quite the speed-freak and Camie is becoming a pro on the snow board. In light of their dance classes mentioned here, we like Uncle Andy's suggestion that the hip-hop Mikey might want to use Spi-diddy as his club handle. It works for me.

Have a great week,

Marin & Nancy, Matt, Camlyn & Spi-diddy


Monday, January 21, 2008 3:22 AM CST

Hello friends and family,
We've gotten all the test results back and Marin is experiencing these dizzy spells, etc. the doc's believe due to radiation! This is great news for us. The MRI showed a slight increase in swelling around the same area of concern, but with a small black dot in the center. The black dot means that that part of the tumor is dead. The PET scan results showed this same result. Mild to moderate growing cancer cells existed but the fast growing cells were no longer showing in the scan. Dr. Geyer said they will review it at "tumor board" which meets every Wednesday just to make sure it is a shared view with all the different doctors.

On Thursday, Friday, and Saturday, Marin's coach, Andy Hay, got her in a long course swim meet to swim her events in time trials at the end of the meet. She swam her back stroke two days, and attempted butterfly one. The butterfly ended up to be a little bit of a mess. Marin is trying to start her dive from the block yet it makes her really nervous. When she gets really nervous, her right side of her body starts shaking, without her being able to control it. Needless to say, her right side started shaking really bad. She finally gave up trying to dive off the block and went from the side. I think it upset her so much she took about two butterfly strokes and felt like she couldn't breath so she didn't swim it. You have to admire her strength and determination in situations like this. Truely remarkable.

Marin's swallowing fears continue. She is starting to hold all those pills in her mouth too long also and the coating is coming off, thus making her throwup. I continue to get angry at her which, in turn, makes me feel awful! I know she can't help it and is trying her very hardest. I think all the suppliments are very important yet I can't be giving them to her if they're making her thowup now.

The weather here is in the thick of rain and it's hard to be hanging out inside all the time. Marin loves to go out side yet gets really cold in the weather here. Michael and I bundled up today and went for a bike ride in the drizzling rain. Fun? I guess.

Hope everyone had a great weekend.

Fondly, Nancy and Marin
Camie, Michael, and Matt


Wednesday, January 16, 2008 2:44 PM CST

Good afternoon,

After discussing Marin's conditions with her doctor, they decided to have me bring her in today to do a pet-scan and another MRI. A pet-scan measures the metabolic rate at which the enhancements are growing. If it is growing faster than a normal rate, then they think it could be cancer. There always is the chance that it is radiation damage. Marin's doctor, Dr. Guyer, believes it is radiation damage and these symptoms are mearly caused from the radiation. There is really no for sure way to determine this without surgery, which we are not doing.

Despite all this testing, Marin's dizziness and such, she continues to smile and be happy. She once again told me yesterday that it's quite all right that she does not have use of her right arm. She functions pretty well with the left, (and a lot of mom's help!). Her swimming is going wonderful and she is looking better and better in the water.

Yesterday, while I was waiting for new breaks to b